Thank you, 93.3 WMMR in Philadelphia, for doing a wonderful, detailed interview with Dr. Jonathan Spergel of Children's Hospital of Philadelphia and the Harris Family about Eosinophilic Esophagitis (EoE) and their upcoming fundraiser for The Center for Pediatric Eosinophilic Disorders at CHOP. The Harris Family is doing a wonderful job of educating the public and raising awareness about eosinophilic gastrointestinal disorders!
The interview can be heard at WMMR's website via the following link:
Public Affairs - Eosinophilic Esophagitis - Weekends Blog | 93.3 WMMR: Everything That Rocks
The fundraiser, "Food Phight 5K", will be held on Friday, May 18th, 2012 at 2 North High Street in West Chester, PA. Registration begins at 6 pm. More information about the fundraiser can be found at www.foodphight5k.com or http://giving.chop.edu/site/TR?fr_id=1380&pg=entry
From the fundraiser's page on CHOP's website: "CHOP's Center for Pediatric Eosinophilic Disorders currently treats 1100 infants, children and teenagers with an eosinophilic disease - the largest clinical population in the world. Patients come from all over the U.S. This clinical population provides an extensive source of data for research.
Currently, CHOP is leading 11 different research studies related to eosinophilic diseases and they are collaborating with other world class institutions. These advances offer high hopes for children who are suffering. However, ongoing research costs a lot of money. That's why we need your help."
I am also the parent of a child who is treated by specialists at CHOP's Center for Pediatric Eosinophilic Disorders and I have been very involved in the eosinophilic community for 8 years. I can personally attest to CHOP's devotion to their patients and to research. Please consider donating.
I am the mother of a child with Eosinophilic Esophagitis (EoE), a disorder which causes the body to adversely react to foods, treating them like an invader and causing damage to the esophagus. I started this blog in hopes of sharing our experiences and what we have learned along the way. Hopefully it will benefit others who are going through similar situations.
Sunday, May 6, 2012
Interview about Eosinophilic Esophagitis on 93.3 WMMR in Philadelphia
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Hi,
ReplyDeleteI am a mom who's son was diagnosed with eso about one year ago. We are having such a difficult time. He is allergic to corn, soy, potato,legumes,apple ,watermelon,barley,wheat whey and we are still testing for other foods.This horrible didease is breaking my heart! He had another endoscopy yesterday and we thought that it would be better and it was not. He has stayed away from everything he is allergic too. Do you have any suggestions what to eat and do you buy organic food?
Please help!!
Thankyou,
Jill