Eos Mom - Life With Eosinophilic Esophagitis

I am the mother of a child with Eosinophilic Esophagitis (EoE), a disorder which causes the body to adversely react to foods, treating them like an invader and causing damage to the esophagus. I started this blog in hopes of sharing our experiences and what we have learned along the way. Hopefully it will benefit others who are going through similar situations.

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Monday, August 22, 2016

The US Dept of Education's new "Dear Colleague Letter" Addressing ADHD

There is a new "Dear Colleague Letter" that was issued by the US Dept of Education on 7/26/2016, which specifically addresses ADH...

I have not written in a long time. My son's EoE is under control with medication and he is now an adult, so I doubt I will be posting to...

Tuesday, October 2, 2012

Upcoming CURED / Cincinnati Children's Eosinophilic Patient Education and Research Conference

CURED (Campaign Urging Research for Eosinophilic Disorders) and Cincinnati Children's Hospital are co-hosting a patient education and re...

Monday, September 24, 2012

Proposed Pennsylvania Infant and Children's Health Initiative Act

I am using today’s blog post to pass along an important plea for assistance from PA residents to help get important legislation passed. UR...

Tuesday, August 21, 2012

Important New Educational Advocacy Resources for the Eosinophilic Community

Many of us struggle as we advocate for our children in school, trying to make sure they have appropriate modifications and accommodations a...

Sunday, May 6, 2012

Interview about Eosinophilic Esophagitis on 93.3 WMMR in Philadelphia

Thank you, 93.3 WMMR in Philadelphia, for doing a wonderful, detailed interview with Dr. Jonathan Spergel of Children's Hospital of P...

Friday, May 4, 2012

The G-tube is out!

I wanted to write a quick update with some big news: Tonight, after 7 years, my son's G-tube is finally out! He has been back on Flov...

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About Me

EosMom: I have a family member with Eosinophilic Esophagitis, a disorder which causes the body to adversely react to foods, treating them like an invader and causing damage to the esophagus.

I was involved in the eosinophilic community for over 7 years, including leading our local support group and acting as moderator for online support groups. In an attempt to provide more info to those dealing with eosinophilic disorders, created this blog and a website, although I discontined the latter in 2015, as I would have needed to create it anew, with a new host.

I also have experience with various issues that can affect a child's education. I have advocated for my own children and compiled some information in hopes that it will be helpful to others. I started the EosMom blog to share our experiences and what we have learned. Hopefully it will benefit others who are going through similar situations. There are a lot of hurdles to overcome in life; we are all working to overcome them and it's always nice to have some help along the way.

You can also follow me on Twitter: @Eos_Mom

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