Monday, July 19, 2010

REGID - Registry for Eosinophilic Gastrointestinal Disorders

There is now a Registry for Eosinophilic Gastrointestinal Disorders (REGID) at
Eosinophilic Esophagitis (now abbreviated EoE) and Eosinophilic Gastrointestinal Disorder (EGID) patients can register soon, but they are still working on the registration/application. REGID was funded by the NIH and is a national registry of people affected by EoE / EGID. More info can be found on their site, as well as a short video by two of the Drs involved (from Cincinnati). The following paragraph was taken from their website:

"The Registry for Eosinophilic GastroIntestinal Disorders (REGID) is a collaboration of medical centers, professionals, families, and individuals whose mission is to improve the knowledge, research, and outcomes for people living with eosinophilic gastrointestinal disorders. REGID is not only a national registry of people affected by eosinophilic gastrointestinal disorders but also a forum to enhance the connection of people to resources and research."

They also have informational pages about Eosinophilic Esophagitis and EGID. It sounds like it will be a beneficial resource! Please continue to check back on the site and when it is all up and running, be sure to register all those diagnosed with EoE or EGID as this will not only lead to a better count of how many people have the disorders, but may lead to further research grants specifically for the disorders!

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